You are not alone in this.
Hope, Help & Humor for the dementia caregiving journey.
You didn’t ask for this role.
But here you are — showing up, figuring it out, and loving someone through a disease that doesn’t play fair.
You’re in the right place.
START HERE
Wherever you are today, start here:
You don’t have to figure everything out – just the next step.
I SEE YOU SERIES
For the caregiver who is learning while doing…
adjusting moment by moment…
and loving through the unknown…
I see you.
RESOURCE LIBRARY
A quiet little library of support
Gentle guidance, helpful printables, and tools created with real caregivers in mind.
CAREGIVER COMPASS
Find Your Footing
A gentle way to understand where you are in the caregiving journey — and what might come next.
Hi, I’m Deb
I’m a wife, daughter, and caregiver navigating the twists and turns of dementia caregiving — just like so many of you.
Living With Lewy was born in the middle of real life…
long days, hard moments, unexpected laughter, and a love that refuses to give up.
You’ll also meet Nora Poppins — my whimsical sidekick, inspired by my mom, Elenore (“Nora”), who had a gift for bringing calm and care into even the hardest moments.
Together, we’re here to help you feel seen, supported, and never alone.
SHOP
Thoughtfully created for caregivers
Little things to make a hard journey feel just a bit more manageable.
You don’t have to figure this out alone
I remember what those early days felt like — confusing, overwhelming, and a little lonely.
So I put together something I wish I had back then – A simple Caregiver Survival Kit to help you take your first steps —
and I’d love to send it to you.
- Inside, you’ll find:
What dementia is (and why things feel so confusing) - How Lewy Body Dementia is different
First steps for overwhelmed caregivers
Simple daily care tips
Encouragement for the hard days
A gentle introduction to the Caregiver Compass
No spam. Just real support, once a month.
Hey there! Just a heads-up—this site isn’t a substitute for medical or health advice. The information here is meant to educate and inform, not diagnose, treat, or replace professional guidance. Before making any health-related decisions, please check in with the experts (aka your doctor or healthcare professional).
In other words, we’re here to share knowledge, not prescriptions! Any action you take based on what you read here is entirely up to you—and at your own risk. Stay informed, stay safe!