Start Here
You don’t have to figure this out alone
You didn’t ask for Lewy Body Dementia (or the chaos that comes with it). And yet… here you are, doing your best in a world that changes by the hour.
This page is your calm starting point. Pick the path that matches what you need today — quick survival help, clear education, or support for the hard stuff.
Choose Your Next Step
The Caregiver Survival Kit (Quick Start Guide)
If you’re in the “rogue wave” stage, start here.
A simple guide to steady your footing, organize next steps, and breathe again.
The Caregiver Compass
When everything feels confusing, you need a framework. This is the map many caregivers wish they’d been handed sooner.
Lewy Body Dementia 101
A straightforward, caregiver-friendly hub: what LBD is, what changes over time, and why things look so inconsistent day to day.
Behaviors & Communication Help
Jealousy, suspicion, paranoia, nighttime fear, agitation, looping, refusals… this section helps you understand what’s happening and what to try next.
The “Most Searched at 2 AM” Links
If you’re dealing with something specific today, start with one of these:
Not sure where to start?
Totally normal. Here’s the simplest way to choose:
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Feeling panicky? –> Survival Kit
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Need clarity? –> LBD 101
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Behaviors taking over? –> Behaviors & Communication
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Feeling alone or numb? –> Encouragement & Support
Free Caregiver Resource Library
The Caregiver Joy Shop (Nora's Nook)
Want monthly support in your inbox?
No spam. No noise. Just a steady note with:
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one helpful caregiving tip
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one tiny encouragement
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one “try this” idea you can use right away
Meet Nora Poppins
Nora Poppins is your steady companion here — part guide, part listener, part gentle voice reminding you that you’re not failing, even on the hardest days.
Living With Lewy was created from lived experience and caregiving education, shaped by years of navigating the confusion, contradictions, and emotional weight of Lewy Body Dementia.
Some reflections and longer-form writing on this site may appear under the pen name Marina Matthews, honoring a beloved sister and a shared belief that stories — even hard ones — deserve tenderness.
This space exists to offer hope, help, and humor — along with practical tools that make day-to-day caregiving more bearable.
Start with one step. Not all the steps.
Choose your next right thing — and let tomorrow worry about tomorrow.
